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Speak Up Ontario has resources for resources on how you can get the conversation started on end-of-life Care wishes. With specific information for individuals and families, health care providers, and non-health care professionals, it's a one-stop shop to help you navigate this important and often difficult topic.
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If you have children or youth who are grieving a loss the Children Youth and Grief Network specializes in providing honest information and well-informed support for young people.
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Dying with Dignity Canada educates Canadians about all of their legal end-of-life options, including the constitutional right to medical assistance in dying (MAID), and the importance of advance care planning. Visit their website for more information, including for education or support for both individuals and families, and healthcare practitioners who assess for and provide MAID.
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The Retirement Income Group can help demystify the role of an executor/estate trustee, naming powers of attorney, probate and transferring assets to the people and causes you care about. They take an in-depth look at your financial picture and discuss your short and long-term financial goals. Their mission is to understand where you are now, and how we can forge and navigate the right path to your ultimate destination using a 360 degree approach.
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Publications
- McGovern, M., MacGregor, E., Chomyn, M., Rashigi, S., Sellen, K (2023 – in revisions) Digital Communication at End-of-Life: Exploring Attitudes and Experiences Before and After the End of the COVID-19 Pandemic. JMIR
- Sellen, K et al (2022) The Time Moving Exhibit: Exploring perceptions of time in End-of-Life Experiences. Health Expectations. 1-9.
- Saunders, S., Hale Wilkes, K., Oikonen, K., Abrams, J., Lovrics, E., Stern, M. A., ... & Isenberg, S. R. (2021). The development and realization of a research-through-design knowledge translation approach in a palliative care context. Design for Health, 5(1), 39-60.
- Oikonen, K., & Wilkes, K. (2020). Constellations: Designing participatory engagement and end of life. Proceedings of the Participatory Design Conference 2020, Manizales, Colombia, June 15-19, 2020.
- Sellen, K., McGovern, M., MacGregor, E., Halleran, L., & Ly, L. (2020). Time moving: using the participatory exhibit to explore temporal perceptions around death and dying. Proceedings of the 6th International Conference on Design4Health, Amsterdam, NL, 1 July 2020.
- Sellen, K., McGovern, M., MacGregor, E., Oikonen, K., & Cheung, M. (2020). Dying. using a public event series as a research tool to open communication on death and dying. Proceedings of the 6th International Conference on Design4Health, Amsterdam, NL, 1 July 2020.
- McGovern, M., Sellen, K., Emma MacGregor, E., Halleran, L.& Ly, L. (2020). Concepts of time for HCI research on end of life: exhibit-based research. ACM CHI 2020, Workshop Paper in HCI at End of Life. April 2020.
- MacGregor, E., Sellen, K., McGovern, M., Albess, M., Beaubien, M., & Jang, K. (2020). Ethical considerations for HCI research on end of life: time moving. ACM CHI 2020, Workshop Paper in HCI at End of Life. April 2020.
- Neidzelski, O., Rodin, G., Emmerson, D., Rutgers, J., Sellen, K.* (January, 2016) Exploring Sensory Experiences and Personalization in an Inpatient Residential Hospice Setting. Journal of Hospice and Palliative Medicine, -. *denotes primary author in this journal
- Kachur, O., Sellen, K., Rodin, G. & Rutgers, J. (2012). Challenging contexts: Hearing the voice of residents and families in hospice care design research. In CHI 2012 Workshop "Memento Mori: Technology Design for the End of Life." In Proceedings of the International Conference on Human Factors in Computing Systems, May 05 - 10, 2012, Austin Texas, USA, ACM, New York, NY
